Butterfly child' gets help from specialist with experience in treating her rare skin condition | MUSC Health | Charleston SC
![Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table](https://www.thesun.co.uk/wp-content/uploads/2018/01/nintchdbpict000381479107.jpg)
Boy born with rare 'Butterfly disease' that leaves him with no skin refuses surgery because he's scared of dying on the operating table
![18-Year-Old With 'Butterfly Skin' Wants People to See Past His Excruciating Skin Disorder | Inside Edition 18-Year-Old With 'Butterfly Skin' Wants People to See Past His Excruciating Skin Disorder | Inside Edition](https://www.insideedition.com/sites/default/files/styles/video_1920x1080/public/images/2019-06/061219-butterflyskin-1280x720.jpg?h=c673cd1c)
18-Year-Old With 'Butterfly Skin' Wants People to See Past His Excruciating Skin Disorder | Inside Edition
![Mother was accused of BURNING her sons after a rare condition left them with 'butterfly skin' | Daily Mail Online Mother was accused of BURNING her sons after a rare condition left them with 'butterfly skin' | Daily Mail Online](https://i.dailymail.co.uk/1s/2019/06/10/10/14594558-0-image-a-31_1560160345506.jpg)
Mother was accused of BURNING her sons after a rare condition left them with 'butterfly skin' | Daily Mail Online
![My 'butterfly skin' agony as greedy shoppers have stockpiled all the paracetamol amid coronavirus outbreak My 'butterfly skin' agony as greedy shoppers have stockpiled all the paracetamol amid coronavirus outbreak](https://www.thesun.co.uk/wp-content/uploads/2020/04/NINTCHDBPICT000576058423-e1586518522887.jpg)
My 'butterfly skin' agony as greedy shoppers have stockpiled all the paracetamol amid coronavirus outbreak
![His skin is as fragile as the wings of a butterfly': Mom's heartbreaking account of son's rare skin condition – Love What Matters His skin is as fragile as the wings of a butterfly': Mom's heartbreaking account of son's rare skin condition – Love What Matters](https://lwm-a2.azureedge.net/uploads/2018/04/rare_skin_condition-860x645.jpg)
His skin is as fragile as the wings of a butterfly': Mom's heartbreaking account of son's rare skin condition – Love What Matters
![I've been left in agony with my 'butterfly skin' condition because people have stockpiled paracetamol' | Marie Claire I've been left in agony with my 'butterfly skin' condition because people have stockpiled paracetamol' | Marie Claire](https://img.ti-media.net/wp/uploads/sites/46/2019/12/Myra-Ali-EB.jpg)